I’m twelve, and money is tight. Dad’s in seminary and working maintenance part-time. There’s no such thing as frivolous spending. We only get presents on our birthday, Christmas, and Easter, so imagine my terror when…
Posts tagged Ehlers-Danlos Syndrome
Waiting Around (Again)
This is part of the synchroblog on waiting, to celebrate the release of Those Who Wait: Finding God in Disappointment, Doubt and Delay by Tanya Marlow – out now. See more here and link up to the synchroblog here. The…
What to Expect When Your Dr. Suspects an Invisible Illness
Congratulations! You’ve just been diagnosed with an chronic invisible illness. The First Days During the first few days after your diagnosis, you can expect to experience feelings that alternate between relief (at least now you…
I’m Not Special (and neither are you)
I’m not special. Some people who know me might think that’s a nutty statement. I may not be better than anyone else, but I’m obviously unique, right? Who else is the daughter of a man…
Where I Go When I Disappear
Sometimes I drop off the face of the Earth for a few days. I might make plans with someone, but my husband shows up without me with a vague, “she’s sick” comment. Sometimes I receive…
Review: Coming Back to God When You Feel Empty
I just read Tanya Marlow’s Coming Back to God When You Feel Empty: Whispers of Restoration From the Book of Ruth. I’d seen a reference to it fly through my feed the other day and…
What’s Wrong With Me, Anyway?
I make comments (mostly jokes) now and then, but I don’t usually talk about my health that often. At least, for someone who has been so affected by these issues over the past few years, I…
Interesting Things This Week
Link dump of some cool, interesting, encouraging, and/or insightful things I came across this week. Why English majors make lousy fundamentalists by Morgan Guyton from Mercy Not Sacrifice This might be my favorite thing this…
My Reaction to Ehlers-Danlos Syndrome when…
When I found out my multiple, life-long, unsolvable medical issues were due to just one thing. YES! I have an answer…wait…I have a genetic disorder. When anyone asks, “How are you doing?” When…
Awkward Ehlers-Danlos Syndrome (EDS) Moments
Having a connective tissue disorder (with all the strange, seemingly unrelated medical problems that go along with it) and not even knowing it has led to several awkward moments.