My Reaction to Ehlers-Danlos Syndrome when…

When I found out my multiple, life-long, unsolvable medical issues were due to just one thing. YES! I have an answer…wait…I have a genetic disorder. 

YES wait what


When anyone asks, “How are you doing?”

dont know


When I pay medical bills.



How other people react when I pop my shoulder out of socket.



When I justify not going to the doctor because I can’t take on any more medical debt.

Flesh Wound


When a person told me I must be sick because of a sin I haven’t repented for.

(Since I was born with this, I assume I was one bad ass fetus.)



When I’m getting ready to travel, about to go do something fun, or it’s a holiday… and my neck goes out so I have to stay home and vomit for two or three days.



When people think they know what I am and am not capable of doing.



When I receive unsolicited medical advice from people who don’t know anything about Ehlers-Danlos Syndrome, let alone my specific issues.

stop talking


When people think doctors are magical fairies who can fix all things if you just spend enough money. 



When someone says, “God never gives you more than you can handle.”



When I ask my Facebook friends (the ones who love to share little awareness pictures for things like cancer and autism) to share one of my multiple Ehlers-Danlos Syndrome Awareness month posts.

giphy please please please


When my mother is the only person to share one of my easy-to-share Ehlers-Danlos Syndrome Awareness month posts.



When I read an article about new research that might benefit people with Ehlers-Danlos Syndrome and it gives me hope that there will be a fix by the time my daughters are my age.


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  1. Crystal February 26, 2014 at 8:01 pm

    Hey now, I always share your stuff woman.

    1. admin February 28, 2014 at 4:53 pm

      Aw, sorry. I must have missed it. Some people were clicking “like” but back then that didn’t make it show up in that person’s newsfeed like it does now.


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